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Grand Magnate
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Join Date: Jan 2008
Location: Illinois
Posts: 3,836
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Grand Magnate
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
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LDN and lack of benefits?
I am not sure if I should post this here or in the LDN thread. I also do not have any intention to create controversy. I am seriously considering starting LDN and have heard lots of positive stores here. That is why I am planning on discussing it with my neuro. When I mentioned LDN to him once before, he said he did not consider it an option. This was before I experienced all of the problems I have had with all of the CRAB's and tysabri.
What I am wondering is if anyone has quit using LDN due to problems or due to feeling it has not helped. I am have read some claims that LDN may slow down progression while others suggest it is also lessening their symtoms. I have also read the results of the two preliminary studies. I guess what I am trying to discover is both sides of the story. I know that we are all individuals that may react differently to different treatments.
I am also concerned when I read that others are stopping most of their other meds when starting LDN. As much as I would love to stop using neurontin due to weight gain, it has helped me deal with the burning/tingling pain I experience. I tried to cut down on my dosage the last week and I could not handle the burning in my arm.
I also know that my neuro wants me to start taking imuran if my next MRI shows new lesions. Has anyone taken it with LDN?
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