Been running through these posts most of the summer trying to understand what the Dr.s have been saying. Definitely more information here.
In 2004 I was diagnosed with Guillain Barre Syndrome. Have yet to see that mentioned here. I spent most of the last 4 years with GBSers on another site.
Made several trips to University of Wis. Hosp in Madison, Wis this summer to find out I had Chiari 1 Malformation. The last few years I thought I was dealing with GBS residuals. So this is a whole new language for me.
I go back for a few more tests in a couple weeks. Supposed to be combining that visit with a 2nd appointment with the neurosurgeon and pre-op stuff.
Very scary. Our last visit the the NS seemed cut and dried. Surgery was obvious and every thing would be fine. But reading all these posts has me really worried.
Anybody had any experience at Univ. of Wis.?
nanaj