Barb, I had asked my Neuro for it on numerous occasions and he always said "no"...but not really giving me a specific answer as to why.

Well, I finally got tired of someone who saw me for 10 minutes every six months making the decision for me as to what I could do for a condition that I had. He didn't have it....I did. And everything he had suggested and promoted wasn't working. So, I got LDN on my own and never discussed it with him again. And it's working!! I didn't (and don't) expect it to be a cure or a miracle drug but it sure has helped me a lot. Time will tell if it slows or halts the progression of the disease but that's the same as if I were on a DMD. In my opinion LDN should be considered a DMD.

I go back to see the Neuro in December. I will also go for an MRI in December, too. It will be my last one for 2 years. He'll probably have a fit that I'm taking it but I could care less. My health insurance benefits will be terminated as of 12/31 so I don't expect I'll be going back to see him for another two years or at least until Medicare kicks in.

And I am one of the ones who decided to try and limit the additional sx meds I was taking. I was just taking so many pills a day and the side effects from them were making me more miserable than the sx themselves were. I weaned myself off of Zoloft by cutting my dose in half each week until I was no longer on it. I haven't had one negative side effect from that. And the Neurontin I just stopped taking altogether (I was on 900 mg 3Xdaily). I didn't have any negative side effects from stopping that one either. I have since started walking on the treadmill for a few minutes several times a day and taking Aleve when needed (usually once a day around mid-morning). I no longer take Baclofen, either.

Now, I'm not saying this would work for everyone but it did for me. Just like no DMD works for everyone. It's all individual. But I would absolutely give the LDN a try....with or without your Neuro's blessing.

I'm sorry if I come across "anti-doctor" because I'm not. I just got fed up with someone who doesn't even know what my favorite color is calling all the shots as to what I could do to help myself. I tried his way....now I'm going to try my way. I think, too, that over the past 7 years I have developed a thicker skin and a resolve to take care of myself and not depend so much on others to make decisions for me. I am my own best advocate.

Good luck and hopefully you have a Neuro that is open-minded and will agree to give this a try. But you don't need his permission.....his blessing would be nice....but ultimately it's up to you.

Take care!