Thread: Tle
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Old 11-09-2006, 06:18 PM
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
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Hi Ruby,
Welcome to the forum! I've had TLE for 34 yrs. and just like you I hear words, see colors flashing back and forth in my eyes, and find it hard to speak. I also have jamiaus vu. All of this happens right before I have a complex partial sz. but I learned from my neurologist yrs. ago the moment any of these symptoms begin to tighten up all the muscles in my body and make my hands into tight fists, by doing this it stops the sz.
I've had 2 brain surgeries to help reduce my sz. and I had to have a veeg that didn't show all the brain damage because the brain damage was in to deep in the brain and that may be why nothing is showing up on your eeg also.
If your sz. last over 15 min. or longer you are having a status sz. which is what happened to me when I was on neurontin. I would be in a sz. for 30 min. to 3 hrs. after I went off the neurontin the status sz. stopped.
Check out these website for more info.
www.epilepsy.com
http://www.neuropat.dote.hu/neurology.htm
click on epilepsy to get info.
Here's wishing you well and May God Bless You!

Sue
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