View Single Post
Old 11-10-2006, 12:46 AM
maridane maridane is offline
New Member
 
Join Date: Aug 2006
Posts: 3
15 yr Member
maridane maridane is offline
New Member
 
Join Date: Aug 2006
Posts: 3
15 yr Member
Default You may need to reconsider

Quote:
Originally Posted by alena View Post
hi all,
thanks for your care and responses,

yes, I was considering all those silly symptoms could be somehow B12 def. connected - but - although I have thousands little different symptoms every day, the most troublesome for me is (besides the muscle weakness) the tinnitus (neverending sound that comes frome "somewhere above" my head) - and - vision problems: all I see is constantly moving back and forth, swinging /jerking /wiggling or whatever else - which makes me constantly even more dizzy than I am .. - which seems not to be typical for B12 defficiency, as my doc said - and when I had been checked for B12 deff. - the results came back ok;

I have never been checked for FMS - as I have never had any pain (but the abdominal area "burning" feeling, which is quite new to me - and which I am not sure If I can call it "pain" .. )..

I have had "Evoked Potentials" test (normal) and MRI (brain, C spine) - both normal;
only the spinal tap showed 4 "o" bands plus (as doc said) quite high levels of IgG and also some IgM elevation.

My neurologist still keeps saying "I am healthy"

Thank you all for your responses and info
(I would not have ever believed B12 defficiency could cause so many problems ..)
a.
A Chiari diagnosis. My daughter's MRI report read like this: There is a 4 to 5mm tonsilar herniation but no evidence of Chiari Malformation. She had her decompression surgery in NY 2 years ago for guess what...... Arnold Chiari Malformation and once the docs got in there her herniation was not 4 to 5mm but rather 8mm on the right and 12mm on the left... In other words, she had chiari and the radiologist totally dismissed it or missed it, however you want to look at it. The following is a list of symptoms for Chiari and you can see that this mimics a great many things from MS to Lupus to several others.
Marilyn

In general, people without herniation may not suffer symptoms associated with brainstem compression but, rather, with lack of CSF flow and raised ICP. These symptoms tend to mirror those of PTC and include some of the ones listed below.

Headache (esp. if daily or at lower back of head) frontal headaches as well
Painful tension in neck
Fatigue
Migraines
Dizziness

Visual disturbances / loss of vision / spots in vision / double vision / seeing spots or "halos" / nystagmus
Tingling / numbness in the extremeties
General imbalance / clumsiness
Memory loss
Restricted movement

Intolerance to bright light / difficulty adjusting to light change
Vertigo from position change or sudden standing
Difficulty walking on uneven ground / feeling ground under feet
Poor / degraded motor skills
Difficulty driving

Difficulty negotiating steps
Pressure / pain in the neck
Pressure / pain behind the eyes (soreness in the eyeballs)
Back pain
Neck spasms

Insomnia
Ringing in ears (like the tone heard in a hearing test)
Swaying
Pain when changing position
Tingling / crawling feeling on scalp

Intolerance to loud / confusing sounds
Decreased sensation to touch in extremeties
Decreased sensitivity to temperature
Pain & tension along ear / eye / jawline
Difficulty swallowing / lump in throat / sore throat / swollen lymph nodes
Drooling

Spontaneous vertigo
Hand tremors
Poor blood circulation / cold hands & feet
Sinus / mucous problems
Sleep apnea

Decreased muscle tone
Pressure in ears / ears feel stopped up
Nausea
Difficulty reading / focusing on text
Depth perception problems

Burning sensation in extremeties / shoulder blades
Menstrual problems / severe cramping during period
Fluid-like sound in ears (like water running)
Loss of sexual interest / lack of sensation in pelvic area
Pulling sensation while sitting / standing

Intense itchiness w/profuse sweating
Slurred speech
Gag reflex problems / lack of gag reflex
Pressure / tightness in chest

Loss of bladder control
Frequent urination
Dehydration / excessive thirst
Electric like burning sensations
Unequal pupil size
Loss of taste

Popping / cracking sounds in neck or upper back when stretching
Dizziness
Loss of smell / problems with sense of smell
Dry skin and lips
Sudden / abrupt changes in blood pressure due to awkward position of head
Hiccups associated with drinking carbonated beverages
Skin problems

Other: migraines, oscillopsia, lump in throat, colour blindness, albinism, visual floaters, astymosism, thinning hair, hear heartbeat in ears, throat closes when lying flat, vomit in sleep, swollen face, low body temperature, low blood pressure, legs feel heavy, "strangling" feeling, "floating" sensation, thickening of finger joints.
maridane is offline   Reply With QuoteReply With Quote