Hello! Just wanted to see if you decided on the thymectomy and how you are doing. I was diagnosed March 6 and had a thymectomy April 22. I have my good days and bad days, but overall feel much better. After the thym, I thought I would die from the pain and was taking pain pills like they were going out of style (7 a day per my doc), but slowly improved.

I am still on lots of meds, but my steroids have been reduced from 80 mg. a day to 20 mg a day and I take less Mestinon.

I spoke with my oncologist the other day and he believes that I am in remission - I am cautiously optimistic.

When you get a chance, please let me know how you are and if you have decided anything!

Take Care,
Erin