Thank you! I think that what you are doing in Scotland is wonderful! As for me, I'd love to try and spread awareness. I think any info is a wonderful thing! MY hubby has a radio show (on Saturdays) and has spoken quite a bit about my MG and we have actually gotten calls @ our office asking about MG as well as saying that people are praying for me..............I think that is sooooooo sweet!
People ask about my thymectomy scar all the time and then ask about MG, so why not tell them? Like you said, they have no idea that we are always heavily medicated and yet lead fairly normal lives (or hope to)
Take care and let me know how you are when you get a chance!
Erin
Quote:
Originally Posted by Scots Kat
Hi Erin,
I think your idea sounds great. Over here in Scotland there is a fairly active MG association and they have loads of information pamphlets, posters and clothes availble. I bought a hoody a couple of years ago but sadly with my weight gain it no longer fits!  You might be able to get some ideas ect from their website - let me know if I can be of help (I know sometimes international shipping etc can be a pain).
I've always found people to be generally interested in MG - because I look so healthy and managed to live a fairly active life they are always surprised to find out I'm actually heavily medicated and need to constantly self-monitor! I got some pamphlets about MG from the MGA here and showed them to the people I work with and they were all full of questions etc. The pamphlets are well written too - a sort of "everymans" information pack (they speak about MG as a "rag-doll disorder). The MGA also do a bunch of fundraisers and even send people with MG into schools to speak to kids about what it's like. I think any type of information is good and everyone should be educated to the best of their ability. Maybe some won't care (of course) but who knows - you might help one person who has all the right symptoms and didn't know what was going on!
What ever you decide to do keep us posted! |