Quote:
Originally Posted by weeble
Thanks Sally. I've always been one to do my homework. I am very aware of the risk of opportunistic infection, heart failure, liver damage, leukemia, and lymphoma. Unfortunately, the problems I'm having with my brainstem lesions outweigh these risks. I certainly wish this could just all go away, but that's just not happening.
Thanks so much for all those  I'll keep you posted as my chemo nears, probably near end of October. |
Many people have had good results with Novantrone. Jim didn't but that was because it was so new there wasn't much information as far as side effects go. Just one to mention is UTI's. Jim was in kidney failure one month after his first infusion. It could have been avoided, we think, if they had noticed that the pain, swelling and fevers were from a UTI, not ms. He was being treated for a ms exacerbation when it should have been for a UTI. Just a heads up for you. Like Kicker said, all drugs have side effects.
I was all excited about the pump. Jim's spasms are terrible and he's mentioned the pump recently.
Good luck and let us know how you do.