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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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I continue to be pleased
I seem to be making better use of the medications and getting longer on times. I also find it noticeably helps to come on in a shorter time. Today in the early afternoon I began to slip toward off and a week ago might have lost half a day. Thirty minutes of computer time with the light peeking over my laptop screen sent things back the other way. It is now 10:40 PM and I have had no meds since 4:00 PM and am fully on. I did an hour of light therapy (LT) from about 8:30 to 9:30. A week ago it would have been a struggle to get to bed at this time but I seem fine.
No dyskenisias today and only minor freezing in the early afternoon. Big improvement for me over last week.
There is little research beyond what I have posted. Just one other report from a Russian researcher in 1996 that I will add tomorrow. If this gets past the placebo stage for me (and I think it will handily) then I nominate it as a classic case of the drawback to allowing profits and patentability to guide research.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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