Thanks, Porkette and Ellie. It helps to know of others who have had similar experiences and to learn about helpful websites. I am so relieved when I hear about people who have had trouble getting a firm diagnosis or having seizure activity recorded by an EEG and have later been successful in getting good diagnostic data on an EEG or something else and treatment that helps. I'm glad stopping the neurontin helped you, P, but it sounds like you must still have a lot of trouble!

Thanks to both of you! If there are others of you who have experience with having EEGs that didn't show anything at one point(even when you were having symptoms), but eventually got EEGs that showed what was happening, I'd really appreciate hearing your story.

: )