Hello all!

I'm wanting to get a little action going here, so how about we start with introductions? What type of metabolic/mitochondrial conditions are people dealing with? How does it present?

As for me, I have hereditary coproporphyria, or HCP for short. If you are not familiar with it, it is a very rare genetic blood disorder. When my disorder is in full tilt, I have the most severe abdominal pain you've ever had, and then multiply it by four. During an "attack", I also get tachycardia, chest pain, nausea and a headache, but it's the abdominal pain that predominates. My most severe attack required hospitalization, and I have suffered from neuropathy (mainly in my lower abdomen) ever since. Although, in the last three months, it's nearly gone.

I'd love to hear from others...

Wendy in Wisconsin