Quote:
Originally Posted by dennyfan
Hi! I am new to your board. It was recommended to me by a friend. I was diagnosed with RSD about 1 1/2 years ago after a year of misdiagnosis. But the doctors think I have had RSD in mild form for 18 years since I crushed my hand in an industrial accident. But a simple carpal tunnel surgery & ligament repair surgery in April of 2006 started what has been a very hard two & 1/2 years. I am now completely disabled. I had a very active full time job with one of the top delivery companies as a courier and now am home. I miss my job terribly. My son who I am very close to also left for college last year which was so hard. I had a SCS implanted a few monthes ago. It helps but has not been the answer I had hoped for.I tried blocks but they brought no help & horrible side effects. I live in a rural area so there werent a great deal of options open to me here even though I have a great general practitonier who diganosed me first. And the pain specialist I have now is a good doctor. My husband & I were married for nineteen years but had to get divorced to protect him & our home from my medical bills. We are still together but just not married on paper anymore. Getting divorced was one of the hardest things I have ever done. But it was neccessary. For my birthday he gave me an engagment ring & got down on one knee & everything & asked me to marry him again. SO I didnt have to say we were divorced anymore but engaged even if its a "very" long engagement. I can't wait to get to know everyone. Hope you are having a good week of low pain days.
Denny
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Hi Denny and Hubby, and welcome even though it's a RSD family. I have found so much good education and coping skills here. Compassion from everyone- we are all in the same boat. I can understand why it's difficult for family and friends to really know what we go thru. Boy do I understand our children moving away. Our daughter and son in law moved away 1 year ago today. From Phoenix, to Chicago. We miss them so much. I've been up once, but my husband hasn't been up yet. Our daughter keept her job here, an independent court reporter whose firm let's her maker her own schedule. So she flys home every other week. Stays 4-8 days. Her husband comes when he has 3 or 4 days off. That's been so wonderful. They both help me with the house as does my husband. Do you care to share any more details on your scs- what you like and your disappointments? That's interesting about the 18 year diagnoses- Mine was was diagnosed about 5 years later. now total of 12 years and full body. I'm have terrible time sleeping at night from pain and headaches, have trigeminal nerve pain in left temple and now I'm sure the rsd is in my left eye. Incredible pain. I'll call my Dr. tomorrow.Do you live in warm
climate or cold? /what school is you son going to? Does he know yet what he wants to major in? That sweet your hubby was so sensitive. Wow a new engagement ring Last week I tried to get disability but was turned down as We have had our own business for 40 years and I lack 10 credits. We have asked our accountant if we can fix that and qualify. I'm on a group policy with our company. Otherwise , wouldn't qualify.Do you have the one son or more children, we just have our daughter.
I am really sorry you can't work now, and you loved it so much. I did too.
We have a coffee business. We have drivers and trucks and deliver to businesses and car dealerships, all kinds of business where they want to provide for employees and customers. I used to meet with new clients and show them catalogs of equipment to choose from and different coffee samples.I liked meeting with people, everyone loves coffee. We provide Starbucks, seattle's best, all kinds and also vending machines that provide one cup at a time bean coffee and mochas, latte's etc. With the economy, even business's are cutting back. Hope the best and glad you like your Drs.
that can be a challenge. I like mine too, see him once a month. Take care,
Loretta