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Senior Member
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Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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Senior Member
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
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How quickly did all of you get sick with MG?
After reading post after regarding MG and how many of you suffered for years without being diagnosed, I was wondering how long you suffered with MG b/4 being getting REALLY sick? The reason I am asking this is that I went downhill within 6 months - granted, I was tired for a year b/4 being diagnosed, but when I came back from a trip to Belize, I had a really bad fever and headache that lasted one week that NO amount of meds would get rid of. After that, it was AWFUL! My vision went almost immediately and then I could barely get out of bed. Then I couldn't swallow and breathe -  it was all so quick.........Maybe that's why my neuro has been treating me so aggresively. At first I was ticked, b/c I felt like a lab rat, but maybe he's doing all of this b/c I went downhill so fast.........How many of you had symptoms for a while b/4 you had a crisis? I was sick in October of last year, and had my first "crisis" in December - that seems awfully quick, doesn't it? Like I've said b/4, I'm still new to this whole MG thing, but am worrying b/c it seems like several people went years b/4 they had a crisis and I had one so soon - I wonder now what my chances are for remission? If you read this, please respond. I am really worried about this. I know most of you are really tired and don't have a lot of energy, but a quick response would really be appreciated - really appreciated!! For those of you who went downhill really quick, what was your prognosis? Are you still undergoing IV IG treatments? Are you still on tons of meds?Have you ever truly regained your energy? THanks!
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Erin
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