I think almost ANYONE who gets MG will probably never see remission. I personally have met only one person in 10 years.

Your pred dose was decided by your doctor. There are different protocols as well as different competence levels of doctors, different patient reactions, etc. What your doctor did does not sound unusual.

MuSK is a specific type of MG: Muscle specific tyrosine kinase (MuSK) is a surface membrane enzyme that is essential in aggregating AChR during the development of the neuromuscular junction. Its role in mature muscle is not yet clear. Recent studies have shown that antibodies to MuSK are present in 40% to 50% of patients with generalized seronegative MG.

"Crisis," btw, doesn't mean a "bad day" or a "flare up." Crisis is an emergency or near emergency situation when the following are present: Profound weakness of oral motor or respiratory musculature making swallowing foods impossible and handling of saliva difficult or difficulty breathing. When there are profound swallow issues, it takes very little for respiratory failure to occur. Hospitalization is recommended, and intubation is often needed for respiratory support. Simply feeling very weak and having difficulty is not a crisis, but an exacerbation. Only about 7-10% of people with MG ever have a crisis requiring intubation (thank goodness!)