I am trying to get more information for my father. He is 70 yrs old and just in the last year his ET has progressed that his head/mouth shakes and his speech is effected also. The doctors have him on Topamax and endurol and primidone. It does not seem to be getting any better although my mother says it seems to help a little since he started on Topamax. It has been very discouraging for my father as it seems to have aged him significantly in the last 3-4 months. He is extremely embarassed over his voice not and head/mouth shaking. We are thinking of getting an MRI to start the process of elimination of potential other issues but it seems to be classic symptoms or progressive ET. He has seem 2 neurologists and both have diagnosed him since his father also had it. We are seriously wanting to pursue an ET specialist vs. a regular neurologist. Any advice?

I have heard perhaps b6/b12 shots. I also heard that maybe botox shots might help the quivering in his voice.

Help!!!!!!!!