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Old 09-21-2008, 04:03 PM
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Default get another opinion asap

Is your neuro a MD specialist or better, a PD specialist? If not, get one and get a second opinion. Your guy does not sound like he is very familiar with the nuances of PD, and his bedside manner leaves a lot to be desired.

No one wants to take more meds than necessary, but if you, who KNOW how you feel without taking them, need them, then take them. That's what meds are for. And you know from reading about PD that everyone differs in just about every way possible with this disease, from how much sinemet they need, to how fast it acts, to which meds even work for them. I can tell you some days sinemet takes two hours to hit, other days, for whatever reason (what you ate, stress level, etc.) it can kick in within 15 minutes (wish every day were like that for us!).

Read previous posts in this forum, you will find a wealth of information which hoepfully will put your mind at ease. One of the most important things is to have a doc who is on your side! Doesn't sound like you have one of those, so you might want to get one, as soon as you can. And don't feel bad, we are on neuro #4.

You may also want to encourage your wife to read about PD from the caregiver's side-there is a fabulous forum just for this (warning, it can be depressing, but the information and support far outweigh that attribute). This site is all about how caregivers can help and support the PWP, in both the physical and emotional sense. Like this site, it is extremely informative and addresses many of the nuances of PD that too many doctors are clueless about. Your wife's comment that "you don't need those medicines" may not exactly support you in your quest for maintaining optimal functionality and independence, so perhaps reading through the posts may help shed a little more light into what you have to deal with on a daily basis.

Good luck in finding a doc who will support you, it's worth the search.
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