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Junior Member
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Join Date: Nov 2006
Location: Florida
Posts: 8
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Junior Member
Join Date: Nov 2006
Location: Florida
Posts: 8
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MG and Seronegative
Hi Shari...
I'm new to this forum, but not to MG. My diagnosis was made in 1999 based on neuro physical exam and electrodiagnostic testing. As I am also seronegative for the KNOWN autoantibodies, my neuro confirmed my diagnosis also performing a Tensilon test.
It is believed via MG research that there are other yet-unknown antibodies that affect seronegative MG folks.
So don't let a doc tell you that you do not have MG just because your labs were negative.
Oh: A negative CT chest scan does not rule out MG, either.
I hope you find a good neuro...try to seek an MG specialist. If you call your local MDA, they may have a list of MG specialists. Opthamologists often make the diagnosis as ocular symptoms are usually the first to be seen.
I was declared disabled and went into early retirement in 2001. I have many overlap symptoms and other neurological and rheumatologic issues as well (other than the lupus).
Hope you have gotten some answers by now.
Take care, Shari.
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Sharry
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