Thread: Ruling out MG
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Old 11-12-2006, 02:23 AM
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niteowl niteowl is offline
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Join Date: Nov 2006
Location: Florida
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15 yr Member
niteowl niteowl is offline
Junior Member
niteowl's Avatar
 
Join Date: Nov 2006
Location: Florida
Posts: 8
15 yr Member
Default MG and Seronegative

Hi Shari...

I'm new to this forum, but not to MG. My diagnosis was made in 1999 based on neuro physical exam and electrodiagnostic testing. As I am also seronegative for the KNOWN autoantibodies, my neuro confirmed my diagnosis also performing a Tensilon test.

It is believed via MG research that there are other yet-unknown antibodies that affect seronegative MG folks.

So don't let a doc tell you that you do not have MG just because your labs were negative.

Oh: A negative CT chest scan does not rule out MG, either.

I hope you find a good neuro...try to seek an MG specialist. If you call your local MDA, they may have a list of MG specialists. Opthamologists often make the diagnosis as ocular symptoms are usually the first to be seen.

I was declared disabled and went into early retirement in 2001. I have many overlap symptoms and other neurological and rheumatologic issues as well (other than the lupus).

Hope you have gotten some answers by now.

Take care, Shari.
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