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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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Ditch that doc
He's a jerk and an ignorant one at that. The truth of the matter is that most neurologists know very little of what little is known about PD. PWP are "messy" in that we don't heal and make the professional egos happy and we refuse to die and go away. Add in the fact that PD crosses disciplines and that the neuros don't even acknowledge it and you have the problem.
The best solution if you can afford it is a team made up of a neuro, a dynamite GP who will go to bat for you, an endocrinologist, an immunologist, and a GI guy for good measure. Few of us can afford that, but if I could only have one, I'd go with the GP.
The darned neuros should be learning from us instead of sneering.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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