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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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Cheryl -
I am very sad to hear that the reports are calling the Tovaxin trial a failure.   I had high hopes for it.
However, I'm not sure how to "read" your update - do you consider Tovaxin a failure FOR YOU or are you happy with the results. I guess that is really the bottom line.
I also continue to commend you for going through the trial. I wasn't "brave enough" to risk getting a placebo - my MS was just too horrible. But I know that you tried lots of stuff before getting to this point anyhow.
Like everyone else here, I still await a "cure" or at least something more definitive than what is currently available. I still stand by HiCy immensely - but like with all the other treatments, only time will tell. I'm kinda in a grief stage right now b/c I feel like if this fails - I have done everything available and out there. Part of that is reassuring at night when I lay my head down to sleep - and part of it is painful when I awake in the morning just "not knowing" what to expect.
I hate this dumb disease.
~Keri
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