Sorry to hear you are feeling so poorly....

Yes, I've had a positive amyloid biopsy (fat pad aspiration) - was told "nothing could be done" and sent home with nothing more then "oh well"... I contacted one of the amyloid center of excellences in this country (this is criticial) - I contacted Boston University and spoke to the head of the program - who sent me with her instructions to my local cancer center where they repeated the biopsy, did their own biopsy and also sent tissue to Boston, and got a negative... they still suspect it - but have to find it and it can be very elusive and be there for years before they find it - Ive been told any time any procedure is done to have the docs biopsy for it - and they do.... (this disesase can be anywhere your body) - since you have organs that are directly affected - they should be able to get a very accurate biopsy..... and I hope it is negative.... but in any case - be sure that the tests are confirmed (your tests results can be easily sent to abother institutuion for reading) - just let the docs know ahead of time you want unstained tissue taken also... dont be discouraged - this disease does respond to some treatments - there are groups on the net if you just google that are very very helpful, and a strong support network.....

Again, stay strong - and I hope the biopsy is negative... if it isnt though - rememeber - many many in the medical community, because they see it so infrequenty, dont know much about this disease and you need to step up to the plate at that point and take charge...

Sending good thoughts....