Thanks vic, have sent a rather long email to you!. Im prob not gonna be back online until tomorrow as im just so uncomfortable.
I think in my heart i know i have tos so it almost doesnt matter to me what any dr says anymore. A lot of us have shoulder blade pain - so for him to say its not a symptom of tos is ridiculous. Massage helps for me too - for about all of a day!, hot showers/heat pad are a life saver tho.
i think i need to describe my symtoms again as think i was very flustered after the long journey and rushing to the hospital from the train stn.
Quote:
Originally Posted by gibbrn
Hi Tracey,
I am so sorry to hear of your experience being a frustrating one!! I feel for you. I had a doc try to tell me I had crps but i made him change his mind when I described my symptoms to him a little biit better.
The shoulder blade pain is there for me too. My massage helps it, but it really does not ever go away unless I take a huge load of drugs....percocet and diazepam. It is frustrating not to have a diagnosis or to have many diagnoses.
So this doc wants to remove fibrous bands eh.......well this sounds similar to tos surgery. But remember he is a surgeon and that is how he makes his money. If he had spent more time with you I am sure it would have helped you both to make a more accurate diagnosis. I hope you are able to speak to him again perhaps on the phone......you should at least know your x ray results....do you have cervical ribs??? I forget Tracey sorry. I do so I understand it a lot.
You will need to think long and hard about what has been said. If you truly do have crps and you have surgery it could make it much worse. There are members here who have been through this and can explain it to you if they show up or are able to msg you.
http://www.rsds.org/2/what_is_rsd_crps/index.html
that is a good site to explain to you what crps is......look carefully make notes if you can to compare what you do and don't have like a pro/con list....lol see if there are any similaraties in the sides of the page.
I think the biggest thing for crps is to know that a light touch is hellish to you. Also the sweating thing as well.....
http://www.rsdcanada.org/parc/english/index.html
this is a Canadian site with good info.
http://www.stoppain.org/multimedia/crps_script.html
great site is a transcript of the flash media on the following site.....try the below one first and use the flash media box in the top left side
CRPS Flash Animation
http://www.stoppain.org/pain_medicin...pain/crps.asp#
hope some of this helps and does not overwhelm...feel free to email or PM me!
gibbrn@hotmail.com
love and hugs,
Victoria  |