Denise,
I have had RSD/CRPS since 1989...full body. I too experience the muscle spasms and pain that move about my body. You are right. It makes no good sense.
But you are in good company here. We do all understand.
HBOT works for me and I am diving on a regular basis. This is a tough one, but we all manage somehow to get up and survive one day at a time.
I spend a fair amount of time in your wonderful city, if you every want to get together to share, I'd be happy to.
Take care. Welcome....Diana