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Old 09-23-2008, 05:07 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
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15 yr Member
cyclelops cyclelops is offline
Magnate
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Join Date: May 2007
Posts: 2,049
15 yr Member
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This has nothing to do with neuropathy, however, it has to do with the lung and liver. Check out what your protein electrophoresis is...I just happened to get my notes, and in there it said I was low on Alpha one antirypsin. Looking that up, I found that it is a very common gene in northern europeans ( found in many ethnicities however) and a cause of early emphysema or cirrhosis of the liver. Of course, there are cases where it relates to neuropathy, mostly vasculitic. Just a point of interest. It is amazing what you find in your records if you request and read them....you don't get told everything that is in them.

Now, I can take a simple test to see if I carry the gene....which I likely do, and if my husband carries the gene, our kids may be at higher risk for some diseases.

If you have unexplained lung problems, Alpha one antitrypsin deficiency is often over looked and underdiagnosed. You may want to ask what your status is.

Every one with neuropathy probably goes thru the amyloidosis panic, and I hope for your sake your testing is negative. I have been thru the fat pad aspiration which was painless, and mine was negative. Right now the theory is my neuropathy is autoimmune...(theory changes now and then-I am learning to roll with the punches).

Good luck to you on your search.
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Megan (09-24-2008)