I've only been on Prednisone for 6 months now! It has made all the difference in the world! Granted, hairy moon face is not a good look for me - nor is the "wooky" hairy body I now have, but at least now I can work (most days) and can (again, most days) take care of my family
What dos your body do when you try and get off of the steroids? I kknow that the pressure in my eyes has gone up 10 points since I've started on them and my doc wans to check for glaucoma, but Im just so very thankful that it has allowed me to lead a somewhat normal life
! i'm so sorry to hear you've had so many problems - vent away whenever you feel like it! Talk to you soon!
Erin
Quote:
Originally Posted by GodDreamer2007
Cheryl ,You just vent away!!!! It's been a long time since all of us old board members have posted. How is your Mom?
Erin,
How long have you been on the Prednisone. I've been on Prednisone for well over 4 years now, and haven't had a day with out them. I want to get off them more than anything, but my body is giving me some difficulty when ever we try.
Becareful in watching your Adrenal Glands, look for Diabetes, Kidney problems, and of course Blood Pressure issues, and in me it may have caused Pulmonary Hypertension. Prednisone is a great med for immediate results, but there are so many other things that it can affect. Eye pressures, Cataracts...etc. I would give anything if I could get off of it. I'm a little puffy from it, but not too bad, lol...I have more important issues with my body to deal with. Like, I want to Stay awake, I'd like to live a long happy life.
Besides dealing with Myasthenia, I am a Narcoleptic, I have dysautonomia, and now Pulmonary Hypertension, not to mention all the little junk like, Raynauds, Diabetes, thickening of the left heart, 30 percent of my lungs weakened by MG....etc... And I'm only 44.
Wow, I guess I had to vent too.
Love Lizzie
P.S. Does Lois show up anymore?
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