Quote:
Originally Posted by JJLL411
Question:
Love of my life (LL) has recently developed a new symptom after a year on Tysabri - that being intermittent severe body-wide joint pain. Yesterday she was in agony - today she's just fine.
Have any of you had similar (MS) symptom or (maybe Tysabri) side effect? Thanks in advance for any feedback you can provide.
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I have what I used to call joint pain. I found out that it was spasticity in my case. It is the muscles spazzing and pulling on the joints that they are joined to. It's not always the joints and that is what confused me. I get it regularly in my wrist joints, knee joints, foot joints, toe joints and sometimes in my hip joints! It all depends on what muscle group is spazzing. I swear sometimes I feel like I have been hit by a car!
I take baclofen and tizanidine for spasticity now and it controls it (when I remember to take it!) and it relieves it when I DO forget.
Maybe your LL could look into spasticity control and see if it helps.
Let us know how it goes and tell her we're pulling for her! ( only not on her joints!

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