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Old 09-26-2008, 09:35 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by JJLL411 View Post
Question:

Love of my life (LL) has recently developed a new symptom after a year on Tysabri - that being intermittent severe body-wide joint pain. Yesterday she was in agony - today she's just fine.

Have any of you had similar (MS) symptom or (maybe Tysabri) side effect? Thanks in advance for any feedback you can provide.
I have what I used to call joint pain. I found out that it was spasticity in my case. It is the muscles spazzing and pulling on the joints that they are joined to. It's not always the joints and that is what confused me. I get it regularly in my wrist joints, knee joints, foot joints, toe joints and sometimes in my hip joints! It all depends on what muscle group is spazzing. I swear sometimes I feel like I have been hit by a car!

I take baclofen and tizanidine for spasticity now and it controls it (when I remember to take it!) and it relieves it when I DO forget.

Maybe your LL could look into spasticity control and see if it helps.

Let us know how it goes and tell her we're pulling for her! ( only not on her joints! )
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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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"Thanks for this!" says:
ewizabeth (09-26-2008), JJLL411 (09-27-2008), Natalie8 (09-27-2008)