Hi Glenn,

Thankyou for your feedback. I will research this area some more and thank you for those links. In this whole research area, I find that information that one reads and discards as irrelevant (for self) at one point in time, can become more meaningful and significant when revisited as one is steered down another alley. I have been down so many alleys these past 14months.

The first SPEP I had done in August 2007 was done in the initial general round of testing for possible causes of PN and the next one was recommended by my endocrinologist in July this year as I had such a bad cough. I don't know that any of them were particularly thinking Amyloidosis at that time - maybe they were!

It was only a week ago that Amyloidosis was mentioned by my Pulmonologist based on the existance of both PN and recent severe lung deterioration. The Pulmonologist said he is going to be doing more blood tests on the 7th October before the Bronchoscopy, so perhaps he will be doing the more specific Amylodosis tests as you suggest. I know he said he would do a biospy if he sees anything resembling Amyl.