Ali, I thought I was young to be going through this but I am old enough to be your mother (I am 38). You have been through so much Kiddo & you still seem to have such a positive outlook. Your Mom must be so proud of you. I can't even begin to imagine how hard this must be for a person your age. I hope the new program is successful & you find remission. Remember that it happens most for those that are young & that are treated aggressively & it sounds like you & your Mom have fought hard to find that treatment. It sounds like the UK is no different than the US though in finding doctors that even believe in the pain associated with RSD. Finding good doctors is certainely the key. I am sorry your pt specialists have been horrid. I have heard that over & over again. I haven't had problems myself except that they hurt me but through really no fault of theirs. First it was because I wasnt yet diagnosised with RSD & then it was because they were trying things that were just flaring me up so bad I couldn't take it. They finally just gave up & said they were doing more harm then good. But I have heard stories like yours from people over here too hun. I don't think it is just your age. Part of it at least is our disease not being recognized y the medical community as a whole. Keep you positive attitutude because you are truly an inspiration whether you mean to be or not. It is truly my honor to meet you though I wish in heart of hearts that I it hadn't been neccessary for you to seek out support.
hugs,
Denny