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Old 09-27-2008, 10:22 PM
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
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Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Default my mother and PPMS

I just heard from my 63 year old mother that she has to get 5 days of Solumedrol. She was diagnosed in Aug. 2007. I was diagnosed out of the blue in Sept. 2007. They think she has had PPMS for the past 5 years or so. Anyhow, her leg is dragging badly and is incredibly weak. Now her right side may be getting weak. They think it is from the lesion on her spine. The problem with my mother is this has been going on for 2 weeks and she just ignored it until it got too bad (that's her thing -- denial). Is it customary to give PPMS people doses of steroids? Do steroids work on PPMS or do you just keep progressing from where you are? I thought nothing helped PPMS.

Now I will say it's hard because my mother and I are not close (she was a pretty bad mother--long story). But of course I feel for her obviously since this is her first time around on steroids. And it is hard dealing with the anxiety and stress of having to take steroids. She has to drive herself 1 hour to the hospital and back each day. Is that feasible? Her jerk of a live in boyfriend won't drive her even though he is retired and doesn't work.

PPMS and RRMS are two entirely separate disease right? I mean if I have RRMS it won't turn into PPMS, right? Just SPMS.? What exactly does SPMS look like? Do you know it is SPMS only because you used to have the relapsing remitting form.
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SallyC (09-28-2008)