Thread: Tysabri Information & Check In
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Old 09-29-2008, 08:24 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by hkchic View Post
Sorry to have not posted in awhile. I had posted about the downhill slide that I thought might be connected to Tysabri - but it wasn't. It was a major excerabation. My neuro admitted me into the hospital, ran three MRIs and saw a lot of progression and enhanced lesions. He put me on IV solumedrol for 5 days.

After much investigation, he did tell me that he didn't want to change the Tysabri schedule. I was released from the hospital on September 19 and had my second Tysabri infusion 9/26.

I am getting my strength back following the steroids and I had no issues with the Tysabri infusion. I did not pre-medicate this time as the Tysabri nurse chastised me last time (even though my neuro wanted me to).

I am looking forward to great results from Tysabri. Thanks for all who gave me feedback!
Glad to hear you're on the comeback trail! Please let us know how it goes for you!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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