One of my young students explained that she was late this morning because she was seeing her Mayo Clinic physician for her erythromyalgia. She then sat and described for me what she has gone through in the past 5 years to reach this diagnosis and it sure reminded me of your narrative on your daughter. If you would like, I can share this information and maybe she can offer some help.
I teach human disease and had not previously known of anyone with this problem.
Yvonne