Wow... thank you all for your replies and well wishes. I forgot how much I missed this place!

Over the weekend I tried something new. When I felt tired, really tired, I took a nap. Saturday and Sunday both. What a difference! I can't believe how much better I felt. I listened to my body... what a concept!

I do feel like I am in a relapse. It has been a rough summer. At my neuro visit, he suggested that I start using a cane because my balance has gotten so much worse. Without it, he is afraid I may fall and hurt myself. I've been going downhill like that for several months. But I actually feel it leveling out a bit. A lot of the same, but nothing new or worse.

I really didn't want to take any more meds, but I'm now welcoming them if he prescribes it. I feel like I live off of coffee and diet pepsi, yet I read (something I love to do) a couple of paragraphs in a book and I'm yawning and falling asleep. I'm still waiting to hear the results of the sleep study. I will also be curious to get the results of my latest brain mri to see if there have been any changes. I may have to do it over though because I had problems with my veins collapsing when they tried to inject the dye..... 7 times! They told me it was probably because I'm dehydrated, which is probably true since like I said, I live off of coffee and diet pepsi... it's hard to get regular water in there, or I would have to live in the bathroom.

Anyway, thank you so much. I feels so good to have someone understand how I am feeling!