Thread: Trigeminal Neuralgia - Hi, I'm a Newbie
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Old 09-29-2008, 10:40 PM
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dmplaura dmplaura is offline
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Location: Moncton, NB, Canada
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Originally Posted by Sundog30 View Post
Hi Dmplaura,
Thanks for your comments. Can you tell me what you have taken, and what is working the best? I just saw my Neurologist this morning and he is changing my meds. again. I am staying on the Tegretol but he is replacing the Lyrica with Topamax. Has anyone taken this drug? He is also referring me to a neurosurgeon, which is a little scarey.

Thanks.....Bonnie
Bonnie, I'm only taking my Multiple Sclerosis drug (Copaxone injections) and Clonazepam (an anti anxiety medication) for my burning searing pain I have, and my case of headaches. I have been VERY fortunate to not have a repeat of the TN attacks I experienced.

I tried 2 anti convulsants and I had side effects on both (Carbamazepine and Neurontin). I was on Topamax for an extremely short period of time, because I was then diagnosed with MS and on IV steroids, so I quite the Topamax at that time. I asked my GP about trying it again, and based on my side effects on the other anti convulsants, she vetoed Topamax.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Burntmarshmallow (09-30-2008)