Wow Diane. You have had a hell of a time. I admire your strength and resolve. I hope you check back in often on this board and become a member because it is soo helpful and is a wonderful support system. I am glad you found us

I have not experienced the swelling that you mentioned but just recently another member, Fern, posted a thread on lympedema (here:
http://neurotalk.psychcentral.com/thread54603.html) And I can't help but wonder if that may be what's causing your swelling as TOS can cause it. The Online Medical Dictionary defines it as such:
l
Quote:
Lymphedema --> Swelling of the subcutaneous tissues caused by obstruction of the lymphatic drainage.
It results from fluid accumulation and may arise from surgery, radiation or the presence of a tumour in the area of the lymph nodes.
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Well that's a jump off suggestion. Let's see what others have to say. Take care!