Now this sounds pretty common to the temporal lobe seizures that I have! I have complex partial, and simple partial. I've had those for 16 years now, and just last year the grand mal started up if I don't take my meds. The lights you see can be either be only a simple partial seizure. Or it can be an aura/simple partial. The aura is ranked as a simple partial seizure since it's abnormal electrical activity in the brain that effects you, but you stay alert. An aura is telling you a stronger one is on the way. So then you could be getting hit by a complex partial, grand mal, etc.. But the simple partial seizure alone is one where you can have deja vu, see things, hear things that aren't there or affect your hearing for a few seconds.
As for the EEG, you can have the average one, or you can have the invasive EEG. That one is a major one where they drill holes into your skull, and pleace the wires to detect a seizure on your brain. That gives a 1000% more detailed and better EEG. But the basic one is the best and the safest. Then you can have a video EEG where during the EEG the video tape you to see how you act during a seizure when you have one. If you have any questions about your first neuro visit. After you go through the simple registration, you get a choice of things to click on. One of them is advice for your first neurology visit. I know this won't be your first, but it might show some good questions to ask him. Also you can type in questions and they respond in a day or two.
Sincerely
shawn33
Quote:
Originally Posted by Mac33
Hi guys - I posted this over on the general form and it was suggested I paste it here too, to see if it means anything to any of you.
Brief medical history - I've been diagnosed with cerebellitis (inflamation of the cerebellum), and have assorted other neurological issues, which may or may not be related.
Tests I've had so far are CT scan a few months ago (negative), MRI in May or June (also negative) and visual and somatosensory evoked responses tests (again negative). I have been seeing flashing lights on and off throughout my illness (starting in April) but didn't note down times or frequencies so I'm not really sure if they came in blocks or were constant. I did ask if an EEG would be helpful but the doctor said "you've been seeing them for so long now it probably isn't anything" (!!).
Anyway I had an episode a few nights ago, not sure how relevant it is; I'll be telling me neurologist about it when I see him in two weeks but I wanted to throw it out here in case it rang any bells, so I might be able to look up useful info prior to the appointment:
while I was on the computer I experienced some strange perceptual changes. Basically the monitor seemed to be VERY far away; I looked at the keyboard and it and my hands seemed hundreds of metres away. This then made me feel very tall, huge, almost as if I was stretched or a giant. Colours seemed normal, my vision seemed as sharp as normal, but I don't remember checking my peripheral vision or how wide my field of vision was.
My apparent height made me feel VERY sick.
If I closed my eyes, on reopening them my sight seemed fine, but within a couple of seconds it was back in "everything far away" mode.
I got up to be sick, but my balance as completely gone and I staggered/fell (loss of balance was my initial neurological problem).
After I was sick, I got back to my computer and my vision seemed to return to normal, but I then started smelling burning. (No-one else could smell anything.)
The perception/vision was strange for 5-10 minutes, and the burning smell for another 5-10 minutes after.
I felt both starving hungry and very nauseus for the rest of the night. When I went to bed I then slept for about 15 hours.
Any ideas or comments? Thanks!
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