Hi,
I had IVIg on November 3rd and was very ill afterward. I usually get a headache, but this was ridiculous - threw up for two days and ran a fever. When I called the doctor he referred me to the infusion center to report it. They thought maybe I was getting the stomach flu and it was coincidental. i think not. They were very busy that day and I was in and out in under 4 hours...they usually run the infusion in over 4-5 hours. Never Again! I still feel like I have been run over by a truck! I was feeling rotten following the UTI and was hopeful that I would feel better after IVIg. I went to the doctor last Friday because I couldn't lift my arms to drive...he said he thought I was OD'ing on Mestinon - I take 60mg every 4-5 hours., he wants me to cut back to 60mg 3 times a day and see him in two weeks. Today I have food and liquids coming out my nose, can't lift my arms above my chest and feel worse. I have IVIg Friday but I don't even feel like going - just feel like whining so here I am.
Gabrielle