awwhhh Ellie. I hope the VEEG has some big answers for you that make sense and are easily controlled . if not...how about what you suggested to me a bit ago , a referal to see a diffrent doc to see what they say.?
When I first got my shakey jaw shiver fits I would hold my jaw closed tight with my hands and the shakey would travel to my arm and stuff it didnt hurt or anything . now I just let my crazy jaw do whatever the Doc said to just let it miss fire. anyways I wanted you to know I am thinking of ya and really hope you get some answers/solutions soon... dont settle for anything less!!
Best regards... and prayers for you too.
Burntmarshmallow