Thanks for keeping my mom in your prayers. I know she'll appreciate it, and I most certainly do!
I'm on mestinon every 4 hours (120mg.), Cellcept, and IVIG every 4 weeks - in fact this Saturday. Since last month, I've had a home health nurse, and I love getting IVIG at home! So much more comfortable here at home!
I stay pretty busy so have to make sure that I make myself rest. I've definitlely gotten better at it over the last couple of years.
I've had to be on prednisone off and on but never for long periods. I wear contacts (very near-sighted.) My eyes are tired in the evenings, and then I deal with some blurry vision but that's about it. My eyelids droop more and more...that first week after IVIG, I look like I've an eyelift! It's wonderful!