Hi all~
I have it RSD/CRPS in my left leg and I believe it is starting to spread to my right as I have had the rash outbreak there once. I had a spinal fusion in April 07 on L5-S1 and it developed last yr after 16 weeks of PT where I was improving steadily then slowly got progressively worse. Lots of constant nerve pain for a long time mistaken as sciatic pain. It was not until I started with changes in skin,temp and the rash that they suspected CRPS. I have had 4 outbreaks with lesions in just over 2 months now and they just started to give me the spray which works wonders. I do have extreme Allyondnia (sp) so I can't have a fan, clothing,shoes etc or anything on that leg or foot. I have had severe reactions to both Neurontin and Lyrica. I am currently taking Topamax for the nerve pain and Narcotics as I do not sleep at all or for more then a few hours at a time.The pain keeps me awake. I am seeing a specialist in my area for this finally after a year. This is a workers comp issue and I am currently waiting on approval for nerve blocks etc, Even though they say I am far too advanced for them. I am also going to do a trial for a spinal stimulator. I am willing to try whatever at this point.My understanding is it should have been done last yr,as I am pretty far advanced now.I can't even stand loud noises anymore without pain. Thanks and seeing all the photos here I no longer feel alone.I would like to learn how to post photos here though if anyone can tell.Thanks in Advance.
How do you deal with full body RSD??? I can't imagine it!! Wow!!!!!