Hi Dawn and welcome to NeuroTalk! I completely understand what you mean by "those who don't have it don't get it"! That's true with most any condition....if you don't have to live with it day in and day out you really cannot understand what it's like.
Everyone here understands and there are very caring and supportive people here.
I've included the link to the CRPS Forum. Please take a look around and feel free to join in anywhere you feel comfortable.
http://neurotalk.psychcentral.com/forum21.html