Thread: CRPS or TOS?
View Single Post
Old 10-06-2008, 12:52 PM
TraceyW TraceyW is offline
Member
 
Join Date: Apr 2008
Posts: 239
15 yr Member
TraceyW TraceyW is offline
Member
 
Join Date: Apr 2008
Posts: 239
15 yr Member
Default

thanks loretta......it seems both tos and crps (and im sure many other conditions!) are massively under diagnosed - its so frustrating!

im still waiting to speak to the dr who says i have crps - he was meant to call me last week but i havent yet heard. i want to know which of my symptoms he thinks are crps - what testing he wants to do next etc!.....im asuming there are more than just MRI's needed to diagnose this condition? - what is a neuclear med test?.

i can see some similarites with peoples rsd stories - but i can see more with tos....i dont have any burning pain or any real skin sensitivity. only problems i have that arent explaned by tos and possibly with crps is the hair loss on scalp and dry patches on scalp - but this could be a number of other things causing it too!

oh, its all so confusing!

Quote:
Originally Posted by loretta jewell View Post
Hi Tracey,
You have a lot of symptons I relate to.I don't know if all rsd comes immediately after an injury-some people never remember a particular incident and definetly most of us aren't diagnosed for a long long time. I was misdiagnosed and then changed Drs, actually flew black to where had lived before and went to sports injury orthopedic hand specialist. My hand has partial use. Had a neuclear med test. It showed bone loss and deformity. It still gets bright red touching hot or even cold water or a glass. It has a slight shinny gloss look to my hands and bottom of feet. They speech with grasping for words or looking for the right word or starting the sentence over goes with rsd. The limbic part of brain is affected. Recall and short term memory is affected. I have to write things down or I would never remember it. Has seriously affected our business, I miss appointments with people wanting a new coffee service. We have delivery vans deliver coffee and condiments and clean the commercial equipment we loan to them. I really miss the involvement I used to have. One of the drivers is driving me around tomorrow to some car dealerships and businesses. RSD is a autonomic disorder- and that affects circulation and blood pressure high and low. Heart can be involved and other organs. If you can take a couple days and looked under RSD introductions and experiences and read them- learn so much from others and then compare with you. Everyone is different, but there are certain commonalities we all have.Please let me know how everything goes. Loretta
TraceyW is offline   Reply With QuoteReply With Quote