View Single Post
Old 10-06-2008, 10:54 PM
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

You're welcome! I'd like to slap every doc that says RSD can't spread or can't go someplace on the body! LOL Ummm....I'm no doctor but I DO know that our body is one big nerve and since that is how the RSD "spreads", then it can affect every single part of our bodies inside and out! Having procedures done seems to up the odds for spread with a lot of us. I'm always happy to read when someone had something done and it didn't spread.

I term my RSD 'full body', though many would argue the term. I just don't know of any other term and I get tired of listing where it is! LMAO!! So, to spare my fingers, I do NOT have it in my head,face,buttocks or chest. Mine spread pretty fast. It took only 11 months to go from my left knee and lower leg/foot to all 4 limbs. It's been the past year that it has gone into my back as well. I know some people that had theirs spread even faster than that, like just a month or 2 and it took over everything. I don't have it internal, though the jury is out on whether or not it's affecting my bladder. There's no cause for what I feel sometimes.

As for coping....that's easy. I deal with it the same way I have for almost 6 years now...with a smile and lots of laughter! Not to say there hasn't been tears and lots of them but generally it's more smiles and laughs. I also keep myself as busy as possible so it keeps my mind off of any pain I feel. I experimented one time and did next to nothing for a couple of days after my usual 'busy' days. I found I really focused on the pain and each and every twinge I felt which also made things really, really bad for me mentally and physically.To preserve what sanity I still cling to, I prefer to stay busy. LOLOL

Anywho....a block might be just what you need to,hopefully, stop the new pain in it's tracks before it gets a good hold. So, don't wait too long to maybe see about that block.

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote