Originally Posted by TraceyW

Hi everyone,

I saw my new dr today (meant to be only tos specialist in UK). It was a long trip and im really not up to the laptop but i need to as im so confused!

Im 99% i have tos - a pains cons has told me this and a physio.....my symptoms match down to a t......however this new dr thinks i may have CRPS and not TOS (although he may want to do some exploratory surgery to look for any fibrous bands....).

I have looked up CRPS and whilst i have some of the symptoms - i dont have any burning pain, which i understand is a main symptom of CRPS....I get a very cold right hand, but its not burning - more like someone is running ice cold water into my veins!

I have a lot of shoulder blade pain/discomfort. However, he also said that TOS sufferes generally dont have pain in their shoulder blade (from what i understand a lot of you guys do?!!).

My little finger is worst affected on my hand (it often turns a purpley colour and tremors/swells/aches a lot).

I am very confused now and feel like i keep going round in circles......im waiting for a letter from the new dr as he was called away to surgery after i came back from x-ray so we didnt really decide on what to do next - so perhaps i should just see where this goes. I just want to be diagnosed!!! Im not asking a lot.