have you investigated and tried B12 therapy?

Have you been tested and if so are you below 500?

I'd suggest to you that you look into this...since low B12 levels occur in the spinal cord in some degenerative diseases.

It is inexpensive, and easy to do. Those of us on this board, use the activated form of B12 called methylcobalamin.
We buy it for 9 cents a day from iherb.com

There is an RX vitamin made for neuropathy...containing methyl B12 along with activated folate and B6. It is called Metanx, and made specifically for neuropathies:
http://www.metanx.com/
This mixture can be done OTC but metafolin is not easy to find these days. If your doctor approves, you could get this and perhaps your insurance would cover it---but not all do.

Here is a website to read:
http://roseannster.googlepages.com/home
rose had mystery neuro degeneration and B12 was ignored and so she has researched this medically for others who are
having problems not helped by doctors.

Good luck!