Hey Erin,
I've been meaning to write about my experiences anyways so if/when I ever get around to doing it I'll send you a copy. I've got some time off coming up so I'll try to get things started then. Because of the huge variety of symptoms and experiences we've all had it would be interesting to read a compilation of our "stories." Oh! I could also ask some of the groups I'm in on facebook to see if anyone else is interested if you wanted me to.
Good luck with it Erin!
~Kathy