Thread: Tysabri Information & Check In
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Old 10-09-2008, 07:42 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Infusion # 19 today!

Everything went well, no problems, no concerns. It was so smooth I was out of there in 2.5 hours!

The nurse had everything waiting for me when I got there. The pharmacist came in right after the Q&A. I talked to the nurse about the pinpoint itchies and my quest to find out what is causing them. We did the rotation of the bag several times during the infusion. I didn't do the benadry or the tylenol since they didn't do anything last time.

NO ITCHIES TODAY!

We are going to try it again next month, just to make sure that is what it was (the drug and the sodium becoming separated during the hour infusion) but it all went well today.

No relapses since I started, nothing but gravy since May 25, 2007!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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