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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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MRI results - 3 month post HiCy treatment
I got the results back from my 3 month follow-up MRI. (it was 3 months on October 6 - which coincidentally was just about 9 months since I first got sick and dx.)
NO NEW LESIONS!!
NO ENHANCING LESIONS!!
And the report said "SLIGHT" improvement on previous lesions!!
I don't have the report in front of me (left it in friend's car)....but it wasn't bad news by any means.
No lesions whatsoever on cervical or thoracic spine (had had C-spine MRI once...but never T spine).
I'm quite happy - as my last MRI had 2 new lesions... (after 5 weeks on Copaxone and 1 Tysabri treatment)
Appt with my local neuro was also very positive. Even though I'm having some issues (not happy that I have a few symptoms - but it had been 100+ degrees for more than 2 weeks and I have a cold or virus that my immune system hasn't been able to kick) the exam was amazingly different than my previous exams!! Even the neuro commented on a positive note (and I don't think he is capable of emotion), so this was huge.
Also had a NEGATIVE Romberg test for the first time since dx in January!!
I can't believe it!!! 
My hair is growing back - have some nice peach fuzz - actually, a little more than that....however, it is coming in very grey (salt n pepper) - and I'm only 32....so I'm not thrilled about that....but I'm going to be coloring it this weekend. I still wear a wig to work when I see clients...otherwise, I wear a hat or scarf....though lately I sometimes take it off and go without anything.
Anyhow, just wanted to share.
My blog is almost fully done - so I will post that shortly.
I continue to remain very grateful for having the HiCy treatment - I've now had 3 months of improvement and NO worsening....which is a complete turnaround from the previous 6 months, when I was worsening daily.
~keri
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