Originally Posted by Brennan068

Hello everybody,

I know most of you with food/weight issues here are experiencing the side-effects of steroids with weight gain and no problems with eating; I'm on the other side of the issue. I'm not on any steroids, taking Mestinon 60mg 3-4 per day (3 prescribed with a discretionary one if I feel I need it).

My MG is localized to my neck/throat/jaw. I had some ptosis which has nearly completely cleared up since my thymectomy. I had severe paralysis of my tongue which caused extreme garbling of my speaking and paralysis of the left side of my throat causing extreme difficulty swallowing. The speach issue has resolved itself (not sure if that's due to the thymectomy or the mestinon). Unfortunately, the swallowing has not yet. I just finished radiation therapy two weeks ago and the fatigue from that is just now starting to go away; I hope the eating issue resolves itself once I'm not being constantly worn down.

That being said, how do you who experience difficulty swallowing get enough nutrients into your bodies? What do you tend to eat that you find easy/easier to get down? I do take boost/ensure to top up most days but am getting really sick of it and tired of drinking my meals.

Cheers,

Brian.