Hi Jane and welcome to NeuroTalk! I've googled your condition and didn't really come up with anything specific....I've never heard of this condition before so I wanted to try and learn something about it before I responded. Hopefully someone will come along soon who knows more than I do (shouldn't take too long!!

) and they'll be able to direct you to the proper forum.
In the meantime you might try the "Search" engine on the toolbar above (see example below). Just type in what you're looking for and threads and/or posts will be presented that talk about similar subjects.
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I'm so glad you joined us.....please feel free to look around all the forums and join in wherever you feel comfortable.